Bumping, running, walking, jumping, sitting, falling, a finger closed in a book, holding, dropping, crying, bathing, sleeping. All of these are things that I am now scared of.
Life has taken on a whole new twist as we wait to see specialists. Any of the above could cause her injury or mean she's injured or are just a pain in the backside because of a full arm and leg casts.
I jokingly told someone that I was suffering from Post Adoption Depression and they said that there is an actual 'syndrome' called Adjustment Disorder Depression (?)! Not that I am depressed, but little things that I used to take for granted now take A LOT of effort. We knew adopting a child with OI was going to be a challenge, but finding out that she has five healing fractures, compressed vertabrae and the broken arm are a little beyond even the challenge that we thought possible. China had told us her last fracture was Feb. 2010. When we got her, she came with documentation that showed the last known fracture was June 2010 (we should have been told about this, because it was before the referral) and we have no date or record on these five others (which are more recent than June 2010)... Meanwhile she's happy as a lark walking around on a left leg with two fractures and no cast and a right leg with one fracture and a cast. I will hopefully have the chance this week to talk extensively with the local ortho about the left leg, his viewing of her left leg x-rays... We might be looking for a new ortho...
As every day has brought challenges, everyday also brings joy. It is these moments of joy that I dwell on, not on what might happen.
No comments:
Post a Comment