I think I've had enough of all three.
Lillyanna and I went to Shriners yesterday. We met the specialist that I have been communicating with for almost a year and found out that we need more testing, which of course couldn't happen yesterday. We walked or should I say I walked away with a little girl in a stroller unable to walk for more than 30 feet, two stickers, a stuffed bulldog, all the x-rays and discs that I took (that's a good thing), a free book, the hope of finding the answer soon and a migraine.
On Monday Shriners will set up a Dexa (sp?), bone density test, for hopefully some time next week (at this point Tues and Wed. are out because of other things...). Depending on the results of that test, we may or may not be able to start the infusions. The infusion being a three day/two night in the hospital thing. !!!!! Yeah, I hadn't expected THAT! I had been told (or at least heard) three hours for the infusions previously, not THREE DAYS!!!! Not sure how God is going to work this out. I called my parents on the way home and begged for them to move here. Not counting on it, but it would be nice. :)
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