Answers

This last week has been filled with so much. A trip to D, our science co-op, rehearsals, scheduling and then the normal part of life as well.

The trip to D this week makes two in two weeks and unfortunately each time while I was gone, a chicken died. Who would have thought that the person that gets lashed out at the most by a certain child, would also be the person most greatly missed by the same certain child. The chicken incidents are symptomatic of the anger and fear that ANY change causes. Hopefully more healing will occur in this area before I have to head to D again.  Hopefully.  Praying.

We also now have an official diagnosis for Lolipop. On the day that marked her 4 monthiversary with us we found out that she indeed has Osteogenesis Imperfecta. We knew she had this, but getting a US doctor/specialist willing to diagnose it and treat it has been another battle. A four month battle. In the coming weeks we will be seeing an endocrinologist about bisphosonate treatments. We also have to go back to have her cast off. :) Come to find out her right fibula was fractured, again. This makes three fractures in the four months she's been with us and somewhere around 13 in her life (that we know about). It may sound like we are bad parents, but we have no idea of when this fracture happened. However, this is common with OI and one of the symptoms of OI.

Here's some excerpts from some of the literature we have. "OI is initially diagnosed because of fractures that occur with little or no trauma or injury." "There is no cure for OI. The main goal of treatment is to limit the frequency of fractures and encourage mobility and independence."

On the way home, after hearing her diagnosis, I was overcome with emotion (while driving!  Why is it always great revelations happen when driving?!  lol!).  We finally know what the monster in the closet is.  We finally know how to proceed and we are not still searching for answers.  Though we have identified the monster and know a direction, it still doesn't soothe a mother's heart for not wanting her child to hurt and wanting to make the owies go away.  

I have comfort in that God brought Lolipop into our family.  He sees the end from the beginning and knows all and sees all.  He sees her pain and wants to comfort her, even more than I do.  In all of this, God has a plan.  But, at least now we have some answers.