Today could be considered a very productive day and yet so unproductive at the same time! Lollipop and I got to go on another out of town doctor run. It somehow has eaten up the whole day. Answers to our most pressing questions were abundant, but no clear diagnosis yet. All tests with the exception of DNA testing are pointing to OI. The DNA testing can have up to a 40% NON-detection rate depending on the type of OI. Types V-VII OI have NO DNA mutation at all. Just in case you were curious. LOL!
On the way home I was one of those crazy people who talk and drive, was handing water and snacks back and looking for a lost piece of paper... I was trying to get a hold of the OI specialist at Shriner's, to no avail. :( I was also trying to let Mr. Incredible know the encouraging news. Thinking that an OI diagnosis is encouraging news probably sounds like I've lost a few marbles, I haven't. Yet. If we can get an accurate diagnosis, we can get treatment and the healing can begin. It is encouraging that earlier in the week she didn't break when she stumbled, but her leg breaking at a second site while in the cast is indicative of a very serious issue.
Lollipop now has SIX doctors and has had 12 appointments in a two month time period. She has more doctors than years in her life! No wonder I feel like I am always running to the doctor!!! 'Cause that's just HER!
Our prayer is that the testing today is the final piece of the puzzle and we can get answers and treatment quickly. We are also praying that the OI specialist is receptive of all the information he is receiving and just because her DNA is negative does not shut the door on her receiving a more aggressive treatment. We pray that all doctors trying to help Lollipop will apply their knowledge skillfully, be blessed by our sweet Lollipop and have wisdom beyond their training. Amen.
No comments:
Post a Comment